Hello! I'm so glad that you arrived here! They say strength is in numbers right? Let's get stronger together! On my journey, I've found that you need to be loud about things that are important to you. So here I am. I hope my story resonates with you and helps you on your journey.
I am an educator (19 years and counting) and a Williams syndrome advocate. My husband Lou and I have been together for about ten years now. Married for three. He puts my domestication skills to shame. Elliana, now 5, was the first to make me a mommy. Elyssa, now 1, added more blessings to our family. Saying that I am utterly grateful for both of my daughters and the bond that they share is an understatement. Red and Fendi, our two dogs, complete the chaos that ensues on the daily.
Elyssa was born with Williams syndrome. Williams syndrome is a genetic condition resulting from a deletion of 26-28 genes on chromosome 7. It occurs in 1 of 10,000 individuals. While there are some challenges that generally come with having this condition such as cardiovascular disease, low muscle tone, developmental delays there is so much more to envision. People with Ws are little rays of sunshine that leave footprints of kindness and love everywhere they go. They have a strong affinity for music and happiness radiates from their smiles. You can follow our family's journey with Ws on our page, Perfectly Placed.
So the nitty-gritty about me. Well, I'm 40. I've reached the age where sleeping with the wrong pillow feels like I fell out of a 12th story window. How did I get here? Actually, number 40 doesn't bother me. The way I felt leading up to this age did. I've been on a crusade for answers to my symptoms since I was 12. Listed below is the shortlist of the mystery symptoms that had and sometimes continue to plague me...
* Cold intolerance
* Night sweats
* Inability to lose weight
* Chronic Fatigue
* Brain fog so debilitating I've had MRI's done
* Panic Attacks
* Hair loss
* Joint weakness
After years of advocating for myself, I finally got diagnosed with an Auto-Immune disease. I was hopeful that with medication to balance my thyroid I would start to feel better. However, this was not the case. I continued to struggle. The worst part for me was not having the energy to play with my girls. This was my breaking point. I knew that there had to be more that I could do to help myself. More proactive work needed to be done.
Through research, talking to the right people, trial and error, and a lot of self-love, I am slowly getting my life back. I've changed my diet. I've added in supplements to support healing. I've incorporated essential oils to raise the frequency of my thyroid= proper thyroid function. All toxic products have been eliminated from our home.
My mission is to be a cultivator of information for you. To keep digging for answers. To look into all modalities for supporting the mind, body, and soul and sharing my experiences with you. Some of it will be eye-opening. Some of it is comical. All of its truth.
Let's work towards removing all of the barriers that create roadblocks for us and restoring balance in our bodies' natural ability to heal. Heal yourself, first. The rest will come later.
PS. If you haven't already joined my private FB group that chronicles all of the things click here atthecore.